Thursday, August 14, 2014

Butterfly Girls Draft Version

Click to enlarge.
Click to enlarge.


Click to enlarge.

This is the draft version of my website idea of "The Butterfly Girls" - which actually *MIGHT* become a real thing eventually.  My daughter and I both suffer from lupus and while there are some decent sites out there, there are none that offer a dual perspective on dealing with it daily.  My lupus is completely different from hers.  Mine started out as the cutaneous (skin) version and then morphed into the full blown systemic lupus.  I have lots of dry, rashy skin problems and my hair is falling out like crazy.  Taylor's on the other hand, jumped into the full blown systemic right off the bat with extreme bouts of tiredness and a multitude of flu-like symptoms.

We would like to talk about products we use (from make-up, lotions to recipes) that make us feel better.  Many of our lupus sites just talk about the symptoms, available meds and where to find other resources available.  The goal of our site would be to educate people about lupus, especially our friends and family, who look at you and say "But you look so healthy!"  (we get that A LOT!)  Lupus used to be thought of as an immediate death sentence and it was hella scary.  When first hear that there is NO cure, you panic and nobody really has answers on how to cope.  The doctors give you a pill and send you on the way.  We would like to show there is a whole life still to live out there!




















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